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Care Partner
of the Month
-September/October
page 9

Ted
Levy
Jupiter, Florida
She gets twitches in the
right leg and foot during the night. I get up and come around to her
side of the bed, massage her foot and move her leg until the twitching
stops. She does not wake; she is unaware of me doing it. Well, Im
up every night anyhow. Im still very wired and tired. I fear
that when Im gone there will be no one to take this kind of
care of her.
Miracle of miracles, almost 9 years have passed since Helaines
stroke and we both are still alive. Were tough. We never give
up! We are both in fair health considering all that we have been through
during the past 9 years. I still have a serious disease that will
take my life early. There is nothing that I can do at this time. I
am too old for a bone marrow transplant. I try to get the most out
of life for whatever time we have left. We live in Jupiter, Florida
now, not a bad place to end up! Its beautiful here, we are happy,
it did not have to turn out this way, I am grateful!
Helaine is unable to engage in a full conversation, but she speaks
a little. Nights are the toughest. I look forward to the morning sunshine
with open arms. I relish the opportunity to converse with others but
sometimes if I am particularly wired I talk too much. I try hard to
control it, but its difficult to be solitary night after night
for almost eight years. Only another isolated caregiver will understand.
A stroke takes its toll in every area of life. The average
person who has not been touched by the tragedy of ill health cannot
imagine how far reaching the complications are and what problems it
sets into motion. If you are not a caregiver you cant appreciate
the magnitude of exhaustion and mental anguish that caregivers endure.
I was ever present at the hospital to care for her needs. Now her
needs are forever but its OK with me. I thank God every day
for letting her stay with me! I can kiss her. I can talk to her. I
can touch her. I can speak with her. I can laugh with her. I dont
take anything for granted anymore. Life is but a fleeting moment in
time.
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