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Care Partner of the Month -September/October
page 9

Ted Levy
Jupiter, Florida


She gets twitches in the right leg and foot during the night. I get up and come around to her side of the bed, massage her foot and move her leg until the twitching stops. She does not wake; she is unaware of me doing it. Well, I’m up every night anyhow. I’m still very wired and tired. I fear that when I’m gone there will be no one to take this kind of care of her.

Miracle of miracles, almost 9 years have passed since Helaine’s stroke and we both are still alive. We’re tough. We never give up! We are both in fair health considering all that we have been through during the past 9 years. I still have a serious disease that will take my life early. There is nothing that I can do at this time. I am too old for a bone marrow transplant. I try to get the most out of life for whatever time we have left. We live in Jupiter, Florida now, not a bad place to end up! It’s beautiful here, we are happy, it did not have to turn out this way, I am grateful!

Helaine is unable to engage in a full conversation, but she speaks a little. Nights are the toughest. I look forward to the morning sunshine with open arms. I relish the opportunity to converse with others but sometimes if I am particularly wired I talk too much. I try hard to control it, but it’s difficult to be solitary night after night for almost eight years. Only another isolated caregiver will understand.

A stroke takes its toll in every area of life. The average person who has not been touched by the tragedy of ill health cannot imagine how far reaching the complications are and what problems it sets into motion. If you are not a caregiver you can’t appreciate the magnitude of exhaustion and mental anguish that caregivers endure.

I was ever present at the hospital to care for her needs. Now her needs are forever but it’s OK with me. I thank God every day for letting her stay with me! I can kiss her. I can talk to her. I can touch her. I can speak with her. I can laugh with her. I don’t take anything for granted anymore. Life is but a fleeting moment in time.

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